Doctors blamed menopause for my tiredness, but now I have weeks to live

Doctors blamed menopause for my tiredness, but now I have weeks to live

A WOMAN whose fatigue was attributed to menopause has been told she has weeks to live.

Sonia Scott, 48, said she was “frustrated” when her symptoms were ignored because of her age.

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Sonia Scott is desperate for more time with her four children after being told she has weeks to liveCredit: Jam Press
The 48-year-old woman has been told she has an inoperable brain tumour

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The 48-year-old woman has been told she has an inoperable brain tumourCredit: Jam Press

It wasn’t until he had a seizure while driving in August 2021 that doctors ran tests.

Sonia, a single mother of four from Bracknell, Berkshire, was found to have an incurable grade 4 brain tumour.

She said: “At first I was told I had 18 months to live, but more recently my consultant gave me the shocking news that I only had four weeks.

“Luckily, it’s been twelve weeks since then, but it scared me.

“All I want is more time with my kids. As much time as I can get.”

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Sonia had visited her GP complaining of headaches and fatigue, two key symptoms of brain tumors in adults.

She said: “I didn’t think I had something as devastating as a brain tumor but I felt something wasn’t right.

“I was frustrated that my symptoms were attributed to menopause because of my age without any further investigation.”

Doctors also thought he might have depression or stress.

“Then on August 25, 2021, I was driving when I had my first seizure,” Sonia said.

“It was like an aura passed through my eyes followed by facial twitches and body tremors – it was extremely scary that I couldn’t control it.

“Fortunately, my two youngest children were not in the car and I did not put anyone else in danger.

“I managed to stop the car and a concerned pedestrian called the emergency services. I was taken to A&E as a precaution.

“I wasn’t hurt but I was in bed for hours before I was sent home and they told me to wait for a letter to invite me for an MRI.”

Twelve days later, on September 6, former gym worker Sonia was taken back to hospital for an urgent MRI.

It showed he had a brain tumor, but a biopsy was needed to make a formal diagnosis.

The biopsy was carried out by specialists at the John Radcliffe Hospital in Oxford.

The operation was canceled three times before the biopsy was taken on October 22, six weeks after his MRI results.

Sonia said: “I got an infection after the operation and needed further surgery. Then on December 2, my consultant explained the biopsy results to me on a video call.”

The doctor explained how Sonia has IDH grade four wild-type glioblastoma, which means it is fast-growing and aggressive.

Brain tumor spreads rapidly by growing tentacles that invade brain tissue.

Doctors estimate that life expectancy is between 12 and 24 months with treatment or only five months without.

Sonia said: “I was alone getting this distressing news due to Covid and I couldn’t take it – I was numb from the shock.”

Sonia, who is mum to Samuel, 22, Benito, 20, Katie, 10 and William, eight, is now determined to make as many memories as she can with her children.

Sonia said: “My older children have been amazing, they’ve taken it in stride even though it must be very difficult. The younger ones know ‘mum’s out of their mind’ but that’s it.

“I can say this to explain to them why I’m tired or why my speech may be slurred. They accept it – my son says “you have a hole in your head”, and that’s true. I am open with them as much as I can.

“When the time is right, I will explain more, but I don’t want to scare them and cause them distress too soon. I have a plan to take them to the hospice and show them there.

“When I move there, I could tell that this is a place where people come to die and this can help them understand each other.

“It’s painful. It’s a lonely and difficult place to be on this journey. As a single mother I have always been so independent and it takes a lot of mental effort to ask for help.

“But I’ll do anything for my kids. My family and friends have been very supportive.”

Sonia said she worries about her younger children who will grow up without her.

She said: “Knowing we won’t see Katie and William grow up has devastated me, but it’s also shown me how incredibly proud I am of them and their achievements now.

“I got out of the hospital to see Katie’s soccer presentation and for me that was better than a trip to DisneyLand. Right now I just want to be with them as long as possible, that means more than anything.”

Sonia has had 33 rounds of radiotherapy and seven weeks of intensive chemotherapy.

He now has maintenance chemotherapy and scans every six weeks on the NHS and pays for private holistic treatments such as hyperbaric oxygen therapy.

He is now seeking alternative therapies to extend his life and has raised £15,000 on GoFundMe.

It will cover the costs of expensive specialist immunotherapy in Germany which is not available on the NHS.

It’s £10,000 per trip and Sonia has to go every six weeks.

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She said: “My family rallied around us and we put a lot of things into place.

“I’ve started making keepsakes for the kids and I want to write each card to them so it opens up for special days in their adult lives that I won’t be able to see: the younger kids’ 18th birthdays and their weddings, I want to be a part of it in my own way.”

Sonia has had 33 rounds of radiotherapy and seven weeks of intensive chemotherapy

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Sonia has had 33 rounds of radiotherapy and seven weeks of intensive chemotherapyCredit: Jam Press
Sonia said: “All I want is more time with my children.  As much time as you can get

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Sonia said: “All I want is more time with my children. As much time as I can get”Credit: Jam Press
Sonia single-handedly raises Samuel, 22, Benito, 20, Katie, 10 and William, eight

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Sonia single-handedly raises Samuel, 22, Benito, 20, Katie, 10 and William, eightCredit: Jam Press


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