I was told that my youngest son had a sprain; now they give him months to live

I was told that my youngest son had a sprain;  now they give him months to live

An active child, Dillan Ramsey-Aksehir loved nothing more than kicking his football.

Mum Amy Ramsey said he was obsessed, with the 20-month-old constantly kicking his ball back and forth against the wall.

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Dillan Ramsey-Aksehir loves playing soccer, but when his mom stopped him, Amy knew something was wrong.Credit: Amy Ramsey
At first the doctors thought it was just a sprain, but the truth was devastating for the family

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At first the doctors thought it was just a sprain, but the truth was devastating for the familyCredit: Amy Ramsey
Now almost four years old, Dilly is receiving treatment at Great Ormond Street Hospital

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Now almost four years old, Dilly is receiving treatment at Great Ormond Street HospitalCredit: Amy Ramsey

Speaking to The Sun, Amy, 35, said her son, affectionately known as Dilly, had been the most smiley and happy little boy, so when he stopped kicking the football, she knew that something was not right.

When she was just 20 months old, Dilly was diagnosed with leukemia and is now in desperate need of a bone marrow transplant.

Now celebrities including Mark Wright and Michelle Keegan have backed the desperate mum’s campaign to sign up to the blood stem cell register.

During the first lockdown in May 2020, Amy said Dilly, now almost four, started limping.

To become a donor and help Dilly, you can visit the DKMS website.

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At first she wasn’t too worried and thought maybe she had just kicked something else instead of a ball.

Amy, who used to work at Capital Radio, said: “I took him to the doctors and they assured me it was a sprain and would probably heal in two weeks.

“It wasn’t, it got worse and soon he didn’t want to walk,” Amy said.

As her son’s pain continued, Amy decided to go private as the coronavirus pandemic made it difficult to get an appointment.

The mum, who lives in London but is originally from Manchester, said she was then told it was a hairline fracture.

Amy said: “I started to notice other signs, he was pale, had swollen lymph nodes in his neck and armpits and had bruises around his eyes.

“I booked in with a GP because I knew it wasn’t well.”

The family were then referred to the A&E department at the Royal London Hospital.

“I thought they were going to send him home on antibiotics, I never thought it would be anything like this,” Amy said.

The doctors at the hospital took an x-ray and told Amy that there was nothing wrong with Dilly’s bones, that there was no break or fracture.

Amy was told they would need a blood test, which she said didn’t raise alarm bells at first.

At the time, hospitals limited the number of people allowed in to stop the spread of infection.

But after the blood test, doctors told Amy to call her partner, Oguz Aksehir.

Amy said: “They took us into a side room and told us he had leukaemia.

“He had to be taken immediately to Great Ormond Street Hospital (GOSH) and was admitted to intensive care.”

What is leukemia?

Leukemia is a type of blood cancer that affects bone marrow cells and attacks the immune system.

In most cases of leukemia, there is no obvious cause. Little Azaylia had been diagnosed with acute myeloid leukemia (AML), which is a rapidly progressive form of the disease.

Leukemia is a cancer that causes the body to produce too many abnormal white blood cells and makes the body less likely to fight off infection.

These blood cells are not fully developed and are called leukemia cells.

The disease is often classified according to the type of cell affected (myeloid or lymphatic) and how it progresses (acute or chronic).

There are four main types of leukemia.

Acute lymphocytic leukemia (ALL) – A rapidly progressing form of the disease. More frequent in children.

Acute myeloid leukemia (AML) – Rapidly progressive. More frequent in adults.

Chronic lymphocytic leukemia (CLL) – Slowly progressive form and more frequent in adults.

Chronic myeloid leukemia (CML) – It progresses slowly and is more common in adults

From there, Amy was told her son faced three years of treatment.

He has been in and out of the hospital with infections, but initially had a great response to the chemotherapy, which was to make sure the leukemia didn’t come back.

Last Tuesday, mother and son attended GOSH for one of their regular appointments.

“The consultant told me that the treatment for boys with leukemia had changed from three to two years and that we could start planning a normal life.

“Dilly is almost four and was due to start school in September.

“It was like a dream.

“We went home that night and started planning our first big family vacation and I felt like the nightmare was over,” Amy said.

As part of his treatment, little Dilly must have his spinal cord fluid checked every three months.

MY WORST WORST

After telling her that her son would soon be able to live like other children his age, doctors told Amy that they had found cancer in his spinal cord.

“My worst nightmare has come to life.

“It’s something you think about every day, but you just hope it never happens.

“We knew something was wrong. He had Covid a few weeks ago and was very tired.

“It was three weeks that I was very lethargic and didn’t want to walk anywhere.

“His weekly bloods had been fine and we just thought it was post-Covid fatigue,” Amy said.

Dilly will be 4 on August 23, but instead of planning her party, mum Amy is now rallying support for people to come forward to be donors.

“We had to cancel his first proper party and he will have immunotherapy for a month.

“She will also have to have whole body radiation, which means she will not be able to have children.

“If they find a match, we’ll have to move him into a ward two weeks early so they can put him through strong chemotherapy that will kill the old bone marrow.

“When they told us for the first time, I couldn’t stop crying. Our daughter Aiyla is only two years old and Dilly was diagnosed when she was only four months old.

“We’ve never been able to do anything as a family.”

Although Amy said she is terrified, she says she now feels in control of what is happening and will do everything in her power to help her son survive.

FIND A MATCH

Little Aiyla has also been tested for a match, but that’s a one in four chance.

“We need to get as many people as possible to sign up and then send in their kits, so when they start looking for a donor they have a great selection of people to choose from,” he said.

In just one week, DKMS said 12,000 people have signed up to help Dilly.

Amy said that if they can’t find a donor, they will have to take Dilly’s case to a panel and ask if she can get CAR T cell therapy.

However, he said this has a lower success rate for relapse and Dilly’s best chance of survival is to receive the transplant which will “reset” her body.

Amy urged everyone to register and asked those who have already registered to make sure their contact details are up to date, so they don’t miss this important call.

“You never know what it means to families when they get a donor,” she added.

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To keep up with Dilly’s journey, you can follow mom Amy on Instagram.

To become a donor you can visit the DKMS website.

The family is asking people to come forward and register on the DKMS registry

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The family is asking people to come forward and register on the DKMS registryCredit: Amy Ramsey
A bone marrow transplant will save Dilly's life

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A bone marrow transplant will save Dilly’s lifeCredit: Amy Ramsey


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